The launch of the new MAHSC Cardiovascular Domain Patient and Public Involvement (PPI) Panel has had a successful start with its first meeting on 4th October.
The panel has been set up for scientists at The University of Manchester to enable their research to be directly informed by people who live with a cardiovascular condition.
The university conducts wide-ranging cardiovascular research from basic science studies, conducted on cells, to large multi-centre drug trials involving patients at hospitals including Wythenshawe, Salford Royal and Manchester Royal.
Four heart disease sufferers attended the event at The Nowgen Centre and gave feedback on research proposals by presented by Dr Oliver Monfredi, NIHR Clinical Lecturer in Cardiovascular Medicine and Dr Amit Kishore, Consultant Stroke Physician at Salford Royal.
The National Institute for Health Research (NIHR) acknowledges that patients are crucial to influencing the way research is planned and carried out; this new panel will ensure that cardiovascular research is relevant and focused leading to good experiences for people suffering from heart problems.
The MAHSC Cardiovascular Domain plans to hold four panel meetings each year. Each meeting will be attended by up to 3 researchers, from across all MAHSC partner sites, who will present their research plans.
The patient ‘experts’ may be asked to consider a project’s relevance, design and the readability of information written for participants.
The domain is particularly interested in working with patients and service users with the following conditions: heart disease, disease of the blood vessels (peripheral vascular disease), heart rhythm disorders (including atrial fibrillation or inherited arrhythmia syndromes), congenital heart disease, stroke and subarachnoid haemorrhage.
The group is due to meet next in January 2017 and any researchers wanting to present a project should contact either co-chair at Sharon.email@example.com or firstname.lastname@example.org