What is it?
This new panel gives patients and the public an active role in shaping future research projects in heart disease.
Researchers at the University of Manchester need patients and carers help to ensure their research on heart disease is relevant and clear. The panel helps our research staff in Manchester to think about studies from a patient/public point of view.
The panel is made up of people who have experience of what it is like to live with a heart condition. The panel will meet 4 times per year with researchers to give a patient view on planned cardiovascular research. The panel’s first meeting took place in October 2016.
The University of Manchester conducts wide-ranging cardiovascular research from basic science studies, conducted on cells, to large multi-centre drug trials involving patients at hospitals including Wythenshawe, Salford Royal and Manchester Royal. Our doctors, surgeons and academic researchers have had considerable success in obtaining research funding and we want to build on this success by working more closely with patients and service users; particularly in conditions such as heart disease, disease of the blood vessels, heart rhythm disorders, congenital heart disease, stroke and subarachnoid haemorrhage.
The National Institute of Health Research (NIHR) recognises the importance of involving patients in research. Members of the public sit on the funding panels and influence whether a project receives funding or not. Therefore it is imperative that researchers consider the needs and views of patients and carers in all stages of their research.
The University of Manchester recognises the importance of involving patients in research; in particular how patients can influence the way the research is planned and carried out. Such consultation ensures the research is relevant and focused, leading to a good experience for patients and guarantees that information about research reaches its intended audience.
This MAHSC Cardiovascular Domain PPI panel will enable researchers at the University of Manchester to consider the needs and views of patients. The cardiovascular PPI panel is important as it enables researchers to design research projects in collaboration with patients and/or the public, leading to research that is relevant to the patient groups.
Who is involved?
We plan to hold four meetings each year. Each meeting will be attended by up to 3 researchers who will present their research plans. The researchers may ask the panel members to consider the:
- relevance of their project
- design of their project
- readability of the information they have written for participants.
The meetings would last up to 3 hours. In addition, patients may be asked to read some information ahead of the meeting which may take up to 2 hours. Patients will be paid for the time spent attending the meetings and for any reading done beforehand, as well as travel/parking costs. Refreshments will also be provided at the meeting.
The domain is particularly interested in working with patients and service users with the following conditions: heart disease, disease of the blood vessels (peripheral vascular disease), heart rhythm disorders (including atrial fibrillation or inherited arrhythmia syndromes), congenital heart disease, stroke and subarachnoid haemorrhage.
If you are interested in being a part of the PPI panel or would like more information, please email Sharon Hulme or telephone her on 0161 206 5755. Expressing your interest now does not commit you to attending a meeting.
Researchers: Any researchers wanting to present a project should contact the Co-Chairs: Sharon Hulme or Zoe Talks
Links: Please look here for an article about the first meeting in October 2016.