Adolescents and young adults project (MAYAM)

MAHSC has identified improving the health outcomes for adolescents and young adults (AYA) as an area of tremendous opportunity for Greater Manchester.

Across the region we have a variety of care programmes and services and, particularly for this age group, health and social care are interlinked.  Poor outcomes remain a challenge and this project - Manchester Adolescents and Young Adults Matter (MAYAM) – aims to focus on two groups of AYA:

  1. Young people who are expected to transfer from child and adolescent services to adult services; changes in service at this stage creates the risk of disengagement with services
  2. Young people presenting at a service for the first time; this can present a significant burden to the young person who may not be equipped with the necessary information to seek and receive appropriate care (in Manchester this also affects the large student population)

Our work includes AYA with physical and mental health conditions and learning and other disabilities.

Aim

MAHSC aims to bring together stakeholders from different backgrounds and with different perspectives to focus on defining common issues in AYA services and agree options for further development across Greater Manchester.

The steering group leading this project includes:

  • Steve Ball, Consultant Endocrinologist & Clinical Lead (CMFT) and Honorary Professor of Medicine & Endocrinology (MAHSC)
  • Peter Clayton, Professor of Child Health & Paediatric Endocrinology (UoM) Consultant in Paediatric Endocrinology (CMFT)
  • Janet McDonagh, Clinical Senior Lecturer (UoM) Paediatric and Adolescent Rheumatology (CMFT)
  • Louise Theodosiou, Consultant Psychiatrist, Emerge (CMFT), Clinical Professor of Psychiatry (UoM) and Consultant Psychiatrist (Greater Manchester West Mental Health NHS FT)

Activity to date

Three events have taken place since the start of the project where the challenges facing adolescents and young adults and the many good examples of best practice across the city have been shared and discussed:

July 2015:  Establishment of a MAHSC working group to improve health care for Adolescents and Young Adults

25 representatives from organisations across GM with an interest in this area to share experiences.

November 2015: Falling Through the Gaps: Improving Health Outcomes for Adolescents and Young Adults in Greater Manchester

As part of Manchester Policy Week 2015, this event was held to encourage policy makers and influencers to contribute ideas about how to embed services for AYA across Greater Manchester and how to make that attractive to commissioners. A short video presented young people and their clinicians explaining the challenges and problems they faced and was followed by lively discussion and debate both by the attendees and via Twitter (#ayagaps).  The event attended by 50, including representatives from CCG, social care and third sector organisations.

February 2016: Service Development to Improve Health Outcomes for Adolescents and Young Adults in Greater Manchester

This workshop-based event brought together over 50 health and social care professionals from across the region and healthcare system with representatives from healthcare, local governments and charities. In breakout groups, participants discussed and answered questions about fictional scenarios of young people who had a combination of physical, mental and social needs. Facilitators fed back the responses to the whole group and recommended the need for better use of technology, improved education for the workforce specifically on this age-group and the need for measurable outcomes to aid evaluation of services. A summary of the event is available at the bottom of this page.

A research project is now underway looking at where and how young people are accessing services across Greater Manchester and look at ways to measure outcomes.

Report-AYA-Event-24-Feb-2016

For further information about the project and to get involved please contact Aysha Khan, MAHSC MAYAM, Project Coordinator on email aysha.khan@manchester.ac.uk or telephone 0161 275 1671.

Other initiatives

Greater Manchester Strategic Clinical Network has a project looking at transitional care for AYA. MAHSC is connected with this group (led by Dr  Christian DeGoede, Consultant Paediatric Neurologist, Lancashire Teaching Hospitals NHS FT and Clinical Lead, GMLSC SCN)

Advancing Quality Alliance (AQuA) has held a series of meetings for clinicians and HCP focussing on the use of Ready Steady Go (RSG) as a tool for supporting transition.  RSG is a programme for young people with long term conditions.


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